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National Organization for Rare Disorders Patient Assistance Programs | National Organization for Rare Disorders

National Organization for Rare Disorders

Eligibility

Call or email for information

Required documents

Varies by service

Hours

Mon-Thu 8:30 am-7 pm, Fri 8:30 am-6 pm EST
(800) 999-6673
Voice·

Toll-Free

(844) 259-7178
Voice·

Alternate Number

(800) 469-0283
Voice·

Main Phone

Application process

Visit website or call for information

Fees

None

Service area

United States

Offers patient assistance programs to help individuals obtain life-saving or life-sustaining medication that they may not otherwise be able to afford. These programs can provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultations with disease specialists.

An Information and Resource Services team is available to help navigate challenging questions.

Last assured

05/20/2026

Providing organization

National Organization for Rare Disorders

Provides assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford.